Elijah Update...

Hi everyone, it has been a while. Elijah was recently sent for a MRI of his head since he hasn't had one since he was born. The doctor called me today with the results. The good news is that that most everything looks the same as it did with his last MRI. There are some concerns that he may have a some excess fluid, just a small amount though, but something his doctor wants evaluated further. We are now going to be sent to either Duke or Wake Forrest, depending on who can get us in the fastest. I am so worried about this, Elijah has been through so much.



I'm just upset, and yes I'm angry. I'm not angry at God, I am just angry about the way of this world. I am angry that my child has suffered so much, I'm angry that there is such a thing as Twin to Twin Transfusion Syndrome, that I lost two children to it, and that TTTS is the reason Elijah still has problems. I'm angry because my life is so stressful. I get angry when I see people going about their lives with their healthy children and I hear them complain about the silliest things. I don't want to be this way, I understand that I used to be just like those people. Once, not so long ago my biggest worry was whether or not I would get a A in one of my classes, or whether or not my child would be a football star or a genius.

Now before you get mad I am not saying that you or anyone else for that matter doesn't have a right to worry yourselves with things like this. I am saying just be thankful if that is all you have to worry about. Give God the thanks he deserves for all of the blessings you have. In spite of it all I will still Thank God for my blessings, because I do have blessings.



I am thankful, because I know that even though things seem bad, they could always be worse. I know God has a plan for Elijah's life, I know that Elijah is a miracle and that he will be used to glorify God, he is living proof of the fact that YES, God does still perform miracles.



When Elijah was born he was pretty much as close to death as anyone can get. He couldn't breathe on his own, he was brought through life threatening illnesses and surgeries, even when man had given up hope, God brought Elijah through. I will never stop praising God for all he has done for Elijah, and I trust him to bring us through this valley and to the top of the mountain once again!

Elijah several months ago at a birthday party....

A Big Event is coming up!

Hi everyone, it has been a long time. Elijah is doing well. We have a appointment for him in Charlottesville at UVA Medical Center in Charlottesville next week. He will be seeing a Cardiologist that specializes in Pediatric Cardiomyopathy. Elijah will be 11 months old on March 12. His current weight is 16 lbs. He is still recieving PT at home and we are looking forward to the Spring and his first birthday in April!

I have started a team, Team Elijah, Lucas, and David for the March of Dimes, March for Babies. This event is coming up in May. I am looking for sponsers, please visit my page for more information, it can be found at http://www.marchforbabies.org/personal_page.asp?si=5060648C-5A65-43A7-ABB8-1B659217D747&prefill=

NICU notes....

Elijah is doing so good. We may even get to come home in a couple of weeks as long as everything continues to go well! He has recovered nicely from surgery and is starting to eat now. He is able to take 5 mls from a bottle! He has come so far from 1lb 80z, he now weighs 6lbs 8 oz! I hope and pray he continues to do well so that I can go back home. I miss the mountains and it is hard to be 12 hours away from everyone I know and love. But, I am thankful to God for bringing Elijah so far. The NEC could have killed him. That is what took his brother Lucas. I find that when I finally let go, and put it all in God's hands, that's when things seem to start going better! I'm so thankful to have my little guy, and his big brothers! I know God will continue to bless our family!