Friday, July 31, 2009

Blog Hop- Encouragement


born at 24 weeks 0 days a Twin to Twin Transfusion survivor
he weighed 1lb 8oz , he required major surgery during his first week,
The doctors gave us no hope:

So we prayed.........

And he lived!

"O give thanks to the Lord call on his name

and make known

His doings among the peoples!

1 Chronicles 16:8

I hope Elijah's story will give hope to those who are traveling through life's valleys. Through my experience I learned to trust in God 100%, I now have peace in knowing that God is in control of all things, and joy in knowing that God does answer prayers, and that he is always with us, no matter how much it rains, and that through tragedy God can bring a blessing, though it may be hard to see at the time. I know Elijah's life will always be a testimony to Glorify God!

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Thursday, July 30, 2009

Finally a UPDATE!!

Like it tends to do, life goes on...

Elijah is doing well. Both boys have bad colds, hopefully it's not the flu. I am debating if I should take them to the doctor today. If it is the flu I want to catch it in time for medication, if not I have probably exposed them to the flu by taking them to the doctor. It is hard to know what to do, when my oldest son had the flu last winter I didn't take him to the doctor in time for antivirals and he had a really hard time.

On a lighter note, Elijah's therapy(s) are going great. He is babbling away now and he is pushing up on hands and knees and trying very hard to crawl. He commando crawls all over the place. He is almost sitting up on his own. He weighs 19 lbs now, he has come a long way from 1lb 8oz! So far the only lasting effects of his extreme prematurity are the developmental delays. His cognitive skills seem good. He can find his foot now on command, he is a very smart baby! He shows no signs of the dreaded (at least dreaded by me) CP as of yet! The doctor did hear a murmur at his last checkup, but I refuse to worry about it, God has healed Elijah's heart once and HE is in ultimate control!

I thank God every day for the miracles he has worked in Elijah's life.

Our three year old little man is doing well. He is now in therapy for very slight Gross Motor Delays. He will be getting evaluated in the future to see what may be going on to cause his sensory issues. His therapist also seems to think he may be color blind. He is extremely smart, and learns easily,but can't seem to get his colors. Somehow the possibility of colorblindness upsets me more than the thought of him being diagnosed with Aspergers. I'm not sure why this is. I just look at all the colors that surround us, and it makes me want to cry to think he may not be able to see some of them, and may never be able to. I just keep remembering, God is in control!

Little man waters the flowers he just planted!

Brothers and best buddies!

This is just to cute!

Tuesday, July 28, 2009

Blog Hop

Here are some of my favorite kid photo's for the blog hop, enjoy!

MckLinky Blog Hop

Thursday, July 16, 2009

A Picture of Baby Lucas

Here is a picture I found of Lucas. This picture is one of the only pictures we have of him without all of the tubes, it was taken by a nurse the night Lucas went to Heaven. You can see he and Elijah were identical.

In this picture Lucas was not quite a month old and still weighed less than 1lb 8oz. What a tiny beautiful boy!

Sunday, July 12, 2009

sounds like life to me....

Hello all. I have been so busy. Elijah is getting a lot of therapy now. He gets speech twice a week, PT once a week, and OT once a week. I am seeing improvement but he still has a long road ahead. On top of everthing Big Brother A. is going to be evaluated for Gross Motor Delays. I guess so much has been going on with Elijah that I missed out on some important things! I feel so guilty. Also, A. is so VERY smart and verbal that I think I sort of concentrated on that! So now I will probably add extra therapy to my schedule! He is three, so the school system will be responsible for most of his therapy, so he will probably be able to get it while he is in preschool. That will help!

That is one of the reasons I decided to enroll him in preschool. So far he is doing good, but he hates naptime! That isn't surprising!

I have taken lots of new pictures, just got to get them uploaded! Bear with me!

Wednesday, July 1, 2009

Pray for me... Pray for Others

Pray for MeWe participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request. Join a community of friends who care about you, and hope you will care about them.
Wow, it has been a long time. My life has been so busy, and crazy. Elijah is doing quite well. He is still being stubborn about sitting up though! He is getting intense therapy, physical therapy twice a week (one time in the home), occupational therapy once a week, and speech therapy twice a week. Wow! That is like four times a week outside the home. Throw in biweekly visits to Cranial Technology (3 hours from home) and occasional visits to his many doctors in Roanoke (2 hours away), and now wonder I feel so tired, no wonder my three year old is so grumpy.

Would I be a horrible mommy if I put my three year old in a good daycare program for the rest of July? He would probably thank me, poor little guy!

I know I need to put some more pictures up, but I haven't even taken any recent ones, so I'll throw some old pics up and I promise I'll take some new ones soon!

Stay tuned to this blog, I have a feeling things are going to get crazier, and therefore a lot more interesting! Nothing I want to post about now though, I'm sort of waiting to see how things turn out!

Here are those pictures:

Me and Elijah in the NICU last summer.

Me and Elijah at home a few months ago.

Little man looking all serious, he actually looks this way a lot!

Me and little man, poor baby looks tired in this photo!