Friday, April 10, 2009

OOPS, forgot wordless Wed.

Here are a few pics...


Elijah

a older pic of me, Brian, and Dillan on my graduation day from college

Elijah when we first brought him home!

Early days in the NICU


Alex enjoying time with friends and a cupcake at the RMH in Tampa, Fl! Those were some of the worse days of my life but somehow some of the most blessed days!

Thursday, April 9, 2009

Pray for Elijah, he's a sick little guy....

Well we spent last night in the hospital. Elijah had a bad night on the night of the 7th. We sat up all night and yesterday I took him to the doctor. The doctor did two breathing treatments at the office, his oxygen Sat's were lower we would like so she decided to send him to the hospital. Elijah hasn't been in the hospital since his surgery in August. He didn't like it. I live in a small community, the nearest children's hospital is about an hour and a half away. Our little hospital is great, you couldn't ask to have more caring people taking care of you (for the most part). The big problem is that they don't seem to get a whole lot of pediatric patients.
The lab came to draw Elijah's blood, I had already mentioned that it was extremely hard to draw his blood. I just so happened to be down in the parking lot transferring my older son's car seat into my dads car when the lab arrived. My mother ended up being the one to try and help hold Elijah down to have blood drawn. It did not go well, my mother was extremely upset, and she let them know about it. When I went back up, I stepped off the elevator, the first thing I saw was my sister sitting on a bench in the lobby, she looked sick. The first thing I heard was a child screaming. The screams were so anguished and they sounded like a much older child. I looked at my sister and said, "that can't be Elijah" as his room was quite a distance from the elevators. My sister said that yes it was and that mom was losing it. When I went into the room there were three people holding Elijah down, he looked like a pincushion, he was bleeding from at least three places, and the lab tech was jabbing a needle into his arm, his arm was so hyper extended that I was afraid she was going to break it. My mom was livid! The tech finally got a little blood and ruled it to be enough, she was very impatient with Elijah. My mom said she had finally told her to quit hurting the baby and go get someone who knew what they were doing. Oh well, I hate that Elijah had to go through that. Then to add insult to injury Elijah fought the respiratory therapist when he was suctioning his nose out, so Elijah's nose started to bleed pretty bad. We are still getting clots of blood out of it.
I'm hoping we can weather the rest of this out at home, but I don't know for sure. The doctor seemed sure she would see us back at the hospital. She let me bring him home on breathing treatments. Right now I figure I had better get my shower, and pack up some stuff because we may have to go back.

Please keep us in your prayers!

Wednesday, April 8, 2009

Prayer requests

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Tuesday, April 7, 2009

illness and DOC band update...


From the Olan Mills photo shoot, I wasn't really satisfied with these pics...


This is cute,though I wished they would try to make him smile!


Little Elijah....






Giving baby brother kisses.....



Elijah is hanging in there with this illness. I took him to the doctor and he does not have RSV. He is wheezing so we are doing breathing treatments. It is unbelievable, but this is the first time we have had to do breathing treatments with Elijah. You would think they would be a common occurance for a child born with so many lung issues, but Thank God they are not!

Our two year old is on an antibiotic finally, after three weeks of coughing!

I am waiting to here back from Cranial Tech about insurance coverage for the DOC band that Elijah will be needing. When they call us we will have to travel back down there and they will take images of Elijah's head and send them off so the band can be customized for his needs, then we will have to go back the next week to pick it up. After that we will have to travel at least every other week, maybe even weekly for adjustments.

I would be lying if I said this was not going to be very hard on us financially. I am really thankful that gas isn't four dollars a gallon right now! Last year after I lost my job, was put on bedrest for the pregnancy, and after Brians layoff and his huge pay cut, our van was repossessed. Thankfully, I was able to buy a used van. When I bought the van it had about 89,000 miles on it and needed some repair work. We knew that we would have to use the van alot to travel to my medical appointments about an hour and a half away. What we didn't anticipate was having to take the van to Florida and then when we came home the trips to various medical appointments in Roanoke, Charlottesville, Johnson City, and now Charlotte, NC. I honestly don't think this van will make it much longer, it now has about 105,000 miles on it and we have only had it for about a year! It is needing some major work, I'm afraid to have it looked at because I am afraid of what they will tell me! We may be looking at the expense of renting a car for some of our trips to Charlotte. Since the trip was so hard on us last time I had looked into a Ronald Mcdonald House so we could at least rest before coming back home, just to find out that the RMH in Charlotte is still under construction. If anyone knows of a RMH or similar organization in or near Charlotte please let me know!

Since all of this has happened I have never Asked for any help, even when we were 12 hours away from home, thankfully we had the Tampa RMH which provided us with so many of our needs, and of course friends and family sent us what they could and I am forever thankful (you know who you are :) Most of these people were struggling as much a we were at the time. They don't know how much we appreciated the help and the nice gestures, they often brightened very dark and frightening days! The small country church that I attended as a child, and haven't been to in years even took up money for us from their congregation, that money came just in time to assist us in getting Elijah home! God has always provided for our needs! I am so thankful to everyone who has helped!

I hope I don't have to ask people for help with this situation, but I may have to swallow my pride. We are just thankful to have Elijah home and healthy, we are thankful that we have been able to hang on to our house, though I'm not sure how long this can last.


I just ask for prayers that God will provide for this situation as he has always provided for us! I may open a pay pal account and if anyone feels led to give a few dollars we will forever appreciate it! If not we still want your prayers!










God Bless!

Saturday, April 4, 2009

Still coughing.....

Elijah is still coughing, now it seems like it is in his chest. If he is still coughing on Monday I am taking him to his doctor. We found out Friday that Elijah will have to have a DOC band. This is going to mean trips to North Carolina, weekly for a few weeks then bi-weekly. This is going to be very hard on us financially, but I try not to worry. I know God will provide! I'm so tired right now, but I will write more later on this. I am so behind in my online classes, but it is hard to worry about that right now! Keep praying for us!

More later! : )

Thursday, April 2, 2009

Please pray...

Elijah is coughing a lot! It is starting to sound bad. We have made it this far without him being sick. I have been worried, in the past three weeks my husband, myself, and our 2 year old have been sick. I have bronchitis. I really DON'T want Elijah sick, I DON'T want him in the hospital again! Poor baby.

Please Pray!

Wednesday, April 1, 2009

Wordless Wednesday

The Three Stooges, my dad and two cousins!

Little man playing on his early b-day present....












Baby E. enjoying the fresh air, but not the bright sun! : )




Little man and daddy in Tampa at the Ronald Mcdonald House, mommy was in the hospital when this photo was snapped!



My little preacher man fell asleep with mommy's Bible!




My Handsome boy's!





Well almost wordless anyway!! : )