We had our appointment with Cranial Tech on Thursday. What was supposed to be a quick appointment to have digital imaging done turned into half a day. Elijah had a problem with the stocking they had to put over his head to get the pictures done. He had an even bigger problem when they had to hold his arms by his sides. That is one thing he doesn't tolerate. So, he wiggled and he screamed for what seemed like forever. He was very upset. The therapist said that she had never seen a NICU baby who would tolerate being held down. So what ended up happening was this, they had to do it the old fashioned way. They made a cast of his head, guess what, you guessed it, he didn't like it! It was a exhausting day, we got back home at 11pm. Of course we didn't get out of the office until 5pm. Then we were in Charlotte rush hour traffic. It took us an hour to get 10 miles, very frustrating when you are looking at a three hour ride home!
Elijah will be getting his DOC band on our next trip to Charlotte, week after next. Then we will make a trip every other week. Sprinkle in a few trips to Roanoke and that is going to be A LOT of traveling. We have two appointments scheduled in Roanoke this month, with a stay at the RMH likely.
With my husbands BIG paycut(more than half of what he used to make), it is going to be really hard, almost impossible. I have come up with the idea of having a yard sale to try and raise some extra money for travel! I know God will make a way, he always does! :O)
As soon as Elijah gets his band I'll take some pictures and post them, I have a feeling, he's not going to like it!